HNC tiene ahora un nuevo número de teléfono gratuito para el grupo HNC Unión Latina y los miembros que hablan español:
1-855-HNC-LATN
(1-855-462-5286)
(en español solamente / sin cargo).
[HNC now has a new toll-free number for the HNC Latin Union group and Spanish speaking members.]
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Scenes from
recent events.
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Our Mission:
Hemophilia of North Carolina is a non-profit organization dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research, and supportive programs and services.
Our Vision is for all persons affected by bleeding disorders to achieve their full potential without barriers or limitations, until a cure is found.
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Research study participants needed for HNC's two-year research project – Health-related Quality of Life Among Older Men with Hemophilia – designed to obtain new knowledge about hemophilia and aging that may provide important information to enhance care.
More information...
Headlines
Advocacy & Healthcare Legislative Updates
- HFA Legislative Action Center
- HFA Friday Update December 2, 2011
- HFA Friday Update November 18, 2011
- HFA Action Alert – HHS Regional Listening Sessions November 3, 2011
- HFA Friday Update September 30, 2011
- HFA Friday Update September 9, 2011
- HFA Friday Update August 19, 2011
- HFA Friday Update July 8, 2011
- HFA Friday Update June 24, 2011
- HFA Friday Update June 10, 2011
- HFA Friday Update May 27, 2011
- Patient Services Inc. (PSI) Government Relations Weekly Updates:
- Health Reform Update – December 19, 2011 (pdf, 188kb)
- Health Reform Alert – December 19, 2011 (pdf, 102kb)
- Health Reform Update – December 12, 2011 (pdf, 209kb)
- Health Reform Update – December 5, 2011 (pdf, 184kb)
- Health Reform Update – November 14, 2011 (pdf, 184kb)
- Health Reform Update – November 7, 2011 (pdf, 197kb)
- Health Reform Update – October 31, 2011 (pdf, 201kb)
- Health Reform Update – October 24, 2011 (pdf, 193kb)
- Health Reform Update – October 10, 2011 (pdf, 242kb)
- Health Reform Update – October 3, 2011 (pdf, 201kb)
- Health Reform Update – September 26, 2011 (pdf, 217kb)
- Health Reform Update – September 19, 2011 (pdf, 230kb)
- Health Reform Update – September 12, 2011 (pdf, 205kb)
- Health Reform Update – August 29, 2011 (pdf, 172kb)
- Health Reform Update – August 22, 2011 (pdf, 229kb)
- Health Reform Update – August 15, 2011 (pdf, 209kb)
- Health Reform Update – August 8, 2011 (pdf, 184kb)
- Health Reform Update – July 25, 2011 (pdf, 183kb)
- Health Reform Update – July 18, 2011 (pdf, 176kb)
- Health Reform Update – July 11, 2011 (pdf, 209kb)
- Health Reform Update – July 4, 2011 (pdf, 205kb)
- Health Reform Bulletin – June 29, 2011 (pdf, 98kb)
- Health Reform Update – June 13, 2011 (pdf, 197kb)
- Health Reform Update – June 6, 2011 (pdf, 250kb)
- Pre-existing Condition Insurance Plan Update – December 19, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – December 5, 2011 (pdf, 123kb)
- Pre-existing Condition Insurance Plan Update – October 24, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – October 10, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – September 12, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – August 22, 2011 (pdf, 169kb)
- Pre-existing Condition Insurance Plan Update – August 8, 2011 (pdf, 111kb)
- Pre-existing Condition Insurance Plan Update – July 11, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – June 13, 2011 (pdf, 131kb)
- Inclusive Health (Federal High Risk Pool) Updates:
- American Public Health Association PHACT Campaign 2011 – Addressing the issues of severe cuts to CDC and APHA funding
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...And lots of other exciting activities from the past year ... all on our Recent Events page.
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Who? What? – HNC's Basic Guide for people newly diagnosed with hemophilia, von Willebrand disease, or other bleeding disorder.
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Rockfish Camp & Retreat Center, Parkton, NC
February 10-12, 2012
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March 7-9, 2012
Make your voice heard!
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HNC's 8th Annual
Charity Golf Tournament
April 20, 2012
The Preserve at Jordan Lake – Chapel Hill, NC
Registration information
coming soon.
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Other Scheduled Events
Additional Information Coming Soon
February 2012
- Latin Union Program – February 4
- SOAR Art Program – Wine & Design Party – Wake Forest, NC – February 4 (note new date)
- Teen & Parent Retreat: CEO Program – February 10-12
- Call to Action Party – Volunteer Leadership Program – February 25
- Blood Brotherhood Program – February 28
March 2012
- NC Advisory Board for Bleeding Disorders Q1 Meeting – March 2
- NHF Washington Days – March 7-9
- CDC Conference – Atlanta, GA – March 12-13
- Blood Brotherhood & Partners Program – March 24-25
- HFA Symposium – Santa Clara, CA – March 30-31
April 2012
- Latin Union Program – Children's Day Celebration – April 7
- World Hemophilia Day – April 17
- HNC 8th Annual Charity Golf Tournament – April 20
- HNC Adult Retreat – Inalex Communications Workshop – April 28-29
May 2012
- HNC Special Guest & Volunteer Dinner – May 18
- HNC Annual Meeting – May 19
- HTC Region IV Meeting – Ft. Lauderdale, FL – May 20-22
June 2012
- NC Advisory Board for Bleeding Disorders Q2 Meeting – June 1
- Latin Union Program – Welcome to Summer – June 23
July 2012
- WFH World Congress – Paris, France – July 8-12
- Blood Brotherhood & Partners Program – July 14-15
September 2012
- HNC Family Retreat – September 1-3
- NC Advisory Board for Bleeding Disorders Q3 Meeting – September 7
- Latin Union Retreat – September 14-17
- Blood Brotherhood Program – September 27
October 2012
- NC 2012 Hemophilia Walk – October 20
November 2012
- NHF Annual Meeting – Orlando, FL – November 8-10, 2012
December 2012
- HNC Holiday Celebration – December 1
- NC Advisory Board for Bleeding Disorders Q4 Meeting – December 7
Some dates are tentative and subject to change. Additional programs will be listed as scheduled.
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Join HNC's SOAR Program at the Game
January 22, 2012
Cameron Indoor Stadium – Durham, NC
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HNC's SOAR Program presents
Self-empowerment, Intimacy & Family planning
October, 2011 – January, 2012
Raleigh/Durham • Charlotte/Concord • Winston-Salem
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