HNC tiene ahora un nuevo número de teléfono gratuito para el grupo HNC Unión Latina y los miembros que hablan español:
1-855-HNC-LATN
(1-855-462-5286)
(en español solamente / sin cargo).
[HNC now has a new toll-free number for the HNC Latin Union group and Spanish speaking members.]
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Scenes from
recent events.
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Our Mission:
Hemophilia of North Carolina is a non-profit organization dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research, and supportive programs and services.
Our Vision is for all persons affected by bleeding disorders to achieve their full potential without barriers or limitations, until a cure is found.
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Research study participants needed for HNC’s two-year research project – Health-related Quality of Life Among Older Men with Hemophilia – designed to obtain new knowledge about hemophilia and aging that may provide important information to enhance care.
More information…
Headlines
- Bayer Stresses Filtration Step for Kogenate® FS Users – (posted April 12, 2012)
- HFA begins accepting applications for new program – Reimburses for medically necessary items – (posted April 5, 2012)
- Educational participant grants available – NHF 64th Annual Meeting. – (posted April 3, 2012)
 The Spring 2012 issue (pdf, 3.9mb) of The Concentrate newsletter is now available. – (posted March 31, 2012)- HNC staffing and interim leadership – a message to the membership. – (posted March 14, 2012)
- Sue Cowell leaves HNC – HNC Executive Director, who built a strong and vibrant program, is moving to be closer to family. – (posted February 10, 2012)
- HOPE – A new HNC program for families with a newly diagnosed member and families new to North Carolina – (posted February 1, 2012)
- Research Breakthrough in Gene Therapy for Hemophilia B – (posted December 21, 2011)
- Personal Health Insurance Toolkit – NHF Helping Consumers – (posted November 27, 2011)
- Medical Advisory #414: – Warning about use of Non-sterile Alcohol Wipes – (posted October 26, 2011)
 HNC’s Sue Cowell and Duke’s Dr. Courtney Thornburg interviewed on WTVD-11’s “Heart of Carolina Perspectives”, October 2, 2011. (video) – (posted October 3, 2011)
Advocacy & Healthcare Legislative Updates
- HFA Legislative Action Center
- HFA Friday Update April 6, 2012
- HFA Friday Update March 16, 2012
- HFA Friday Update February 24, 2012
- HFA Friday Update February 3, 2012
- HFA Friday Update January 6, 2012
- HFA Friday Update December 2, 2011
- HFA Friday Update November 18, 2011
- HFA Action Alert – HHS Regional Listening Sessions November 3, 2011
- HFA Friday Update September 30, 2011
- HFA Friday Update September 9, 2011
- HFA Friday Update August 19, 2011
- HFA Friday Update July 8, 2011
- HFA Friday Update June 24, 2011
- HFA Friday Update June 10, 2011
- HFA Friday Update May 27, 2011
- Patient Services Inc. (PSI) Government Relations Weekly Updates:
- Health Reform Update – April 9, 2012 (pdf, 229kb)
- Health Reform Update – March 26, 2012 (pdf, 208kb)
- Health Reform Update – March 19, 2012 (pdf, 217kb)
- Health Reform Update – March 12, 2012 (pdf, 188kb)
- Health Reform Update – March 5, 2012 (pdf, 205kb)
- Health Reform Update – February 27, 2012 (pdf, 172kb)
- Health Reform Update – February 6, 2012 (pdf, 209kb)
- Health Reform Update – January 30, 2012 (pdf, 205kb)
- Health Reform Update – January 2, 2012 (pdf, 229kb)
- Health Reform Update – December 19, 2011 (pdf, 188kb)
- Health Reform Alert – December 19, 2011 (pdf, 102kb)
- Health Reform Update – December 12, 2011 (pdf, 209kb)
- Health Reform Update – December 5, 2011 (pdf, 184kb)
- Health Reform Update – November 14, 2011 (pdf, 184kb)
- Health Reform Update – November 7, 2011 (pdf, 197kb)
- Health Reform Update – October 31, 2011 (pdf, 201kb)
- Health Reform Update – October 24, 2011 (pdf, 193kb)
- Health Reform Update – October 10, 2011 (pdf, 242kb)
- Health Reform Update – October 3, 2011 (pdf, 201kb)
- Health Reform Update – September 26, 2011 (pdf, 217kb)
- Health Reform Update – September 19, 2011 (pdf, 230kb)
- Health Reform Update – September 12, 2011 (pdf, 205kb)
- Health Reform Update – August 29, 2011 (pdf, 172kb)
- Health Reform Update – August 22, 2011 (pdf, 229kb)
- Health Reform Update – August 15, 2011 (pdf, 209kb)
- Health Reform Update – August 8, 2011 (pdf, 184kb)
- Health Reform Update – July 25, 2011 (pdf, 183kb)
- Health Reform Update – July 18, 2011 (pdf, 176kb)
- Health Reform Update – July 11, 2011 (pdf, 209kb)
- Health Reform Update – July 4, 2011 (pdf, 205kb)
- Health Reform Bulletin – June 29, 2011 (pdf, 98kb)
- Health Reform Update – June 13, 2011 (pdf, 197kb)
- Health Reform Update – June 6, 2011 (pdf, 250kb)
- Pre-existing Condition Insurance Plan Update – January 2, 2012 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – December 19, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – December 5, 2011 (pdf, 123kb)
- Pre-existing Condition Insurance Plan Update – October 24, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – October 10, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – September 12, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – August 22, 2011 (pdf, 169kb)
- Pre-existing Condition Insurance Plan Update – August 8, 2011 (pdf, 111kb)
- Pre-existing Condition Insurance Plan Update – July 11, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – June 13, 2011 (pdf, 131kb)
- Inclusive Health (Federal High Risk Pool) Updates:
- American Public Health Association PHACT Campaign 2011 – Addressing the issues of severe cuts to CDC and APHA funding
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…And lots of other exciting activities from the past year … all on our Recent Events page.
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Who? What? – HNC’s Basic Guide for people newly diagnosed with hemophilia, von Willebrand disease, or other bleeding disorder.
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“Are You a Savvy Consumer?”
May 19, 2012
Durham, NC
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• Carefree •
• Victory Junction Gang •
• Rainbow •
June through August, 2012
Stokesdale, Randleman, Arapahoe
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Other Scheduled Events
Additional Information Coming Soon
May 2012
- Latin Union Program – Cinco de Mayo Celebration – May 5 – NC Zoo, Asheboro
- HNC Special Guest & Volunteer Dinner – May 18
- HNC Annual Meeting – May 19
- HTC Region IV Meeting – Ft. Lauderdale, FL – May 20-22
June 2012
- NC Advisory Board for Bleeding Disorders Q2 Meeting – June 1
- Latin Union Program – Welcome to Summer – June 23
July 2012
- WFH World Congress – Paris, France – July 8-12
- Blood Brotherhood & Partners Program – July 14-15
September 2012
- HNC Family Retreat – September 1-3
- NC Advisory Board for Bleeding Disorders Q3 Meeting – September 7
- Latin Union Retreat – September 14-17
- Blood Brotherhood Program – September 27
October 2012
November 2012
- NHF Annual Meeting – Orlando, FL – November 8-10, 2012
December 2012
- HNC Holiday Celebration – December 1
- NC Advisory Board for Bleeding Disorders Q4 Meeting – December 7
Some dates are tentative and subject to change. Additional programs will be listed as scheduled.
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April 28-29, 2012
Graylyn International Conference Center
Winston-Salem, NC
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HNC’s 8th Annual
April 20, 2012
The Preserve at Jordan Lake – Chapel Hill, NC
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March 7-9, 2012
Make your voice heard!
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Rockfish Camp & Retreat Center, Parkton, NC
February 10-12, 2012
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