Board of Directors, 2010-11

Richard was employed at the Hemophilia Treatment Center at Wake Forest University for 17 years and has served as Secretary on the HNC Board of Directors and as co-chair of the Fund Development Committee. Currently, he is compensated by LA Kelley Communications and has had other newsletters and journals published concerning bleeding disorders for which he was not compensated. He has no known bleeding disorder or any family history.

Leonard has a 16-year old son, Dalton Dawes, who has severe factor IX deficiency. He anticipates joining NHF as he works more closely with them on advocacy issues. Some years ago Leonard served on the HNC Board and held the offices of Treasurer and Vice President. He is an attorney by profession and is primarily interested in advocacy issues and lobbying efforts.

Kathy has been married for 37 years to a person with severe hemophilia A. She is a member of the National Hemophilia Foundation, and has worked with HNC for most of the years since its inception, serving as member, board member and officer. Kathy served two terms as president of Community Health Charities of North Carolina (CHC-NC), and steps down this year as HNC's agency liaison to CHC-NC and from the CHC-NC board of directors.

Adam is the communications leader for the Information Protection Services group at IBM in Cary, NC. Previously, he was the Director of Communications for Arsenal Digital from May 2006 until Arsenal was acquired by IBM in December 2007. At Arsenal, he led the marketing and communications efforts to establish Arsenal's mid-market and consumer data protection services. He also was a key architect in Arsenal's re-branding campaign that culminated in the company's acquisition. Adam received his bachelors degree in communications from Illinois State University, and has held a variety of positions in high tech communications during his 18-year career.

Jeannie lives with von Willebrand disease, Type 2 Normandy. She is a Licensed Professional Counselor, and currently works as the staff counselor and supervisor at a local Rape Crisis Center. She has experience with grant writing and other non-profit organizations, and is finishing her PhD in Counselor Education at NC State University. Jeannie is co-chair of the HNC Education Committee.

Scott is 27 years old and has severe factor IX deficiency.  He graduated from NC State University with a bachelors degree in chemistry.  Scott currently works for the business law firm of Womble Carlyle Sandridge and Rice, PLLC.

Steve is a severe factor VIII hemophiliac. He has served as President of HNC twice, from 1994 to 1999 and 2000 to 2001, and Vice-President 1999 to 2000. He has been a member of NHF and plans to renew his membership in NHF. He also at one time served the chapter as Treasurer. Secretary, office manager, and was responsible for doing fundraising and planning chapter events. He currently serves Woodlawn Baptist Church as Sunday School Director and teacher. He will be giving up his position as Sunday School Director in September. Steve's daughter Tracey, who will be married soon, is a carrier; and he has a brother with severe factor VIII.

Shawna has von Willebrand Disease. She is a licensed North Carolina attorney, having graduated from the UNC Chapel Hill School of Law in 2004. As an attorney, her primary experience is in business/corporate law. She has assisted entrepreneurs in the formation of their businesses and the acquisition of capital for the growth of their businesses through loans or equity instruments. She is also experienced in directors' and officers' liability issues, employment contracts and disputes, mergers, acquisitions, various financial transactions including the sale of businesses, as well as structuring contracts for the sale of services and products. Shawna's heart has always been in helping people, whether in America or around the world, and she has volunteered alone in many remote areas of third world countries. Prior to beginning the practice of law, she worked in rural Nepal as an English teacher, volunteered on a kibbutz in Israel, and taught English and computer skills in a hilltribe village in Northern Thailand.

Steven is the Regional Coordinator for the Region IV-North Hemophilia Treatment Center Network composed of ten hemophilia centers in Kentucky, North Carolina, South Carolina, and Tennessee. He is based at the University of North Carolina at Chapel Hill. Steven has worked in public health for over twenty years and was the Director of Research at the National Hemophilia Foundation in New York City prior to assuming his current position in 2005. He currently serves as Secretary on the board of directors of the American Thrombosis and Hemostasis Network. His curriculum vitae is available upon request.

Warren is 52 years old and is Hemophilia A severe. He resides in Pineville, North Carolina and is married to Sharon, and they have two girls, Emma and Jasmine. Warren retired from the telecommunication industry in 2002 after spending 18 years with AT&T Communications and another five years with Alltel Communications. Warren is currently attending college, majoring in Human Services with a concentration in Developmental and Physical Disabilities. He is currently interning at Residential and Support Services, in Charlotte. Warren is Director of Patient Advocacy and Care for the ASAP Foundation. Previously, Warren served on the boards of Hemophilia of Georgia and the Committee of Ten Thousand. Currently he is on the board of the Community Collaborative in Mecklenburg County, the governing body for the System of Care Federal Grant for North Carolina, and is an active board member of the Multi Cultural Task Force of National Hemophilia Foundation.

Sally is the social work clinical specialist at the Harold R. Roberts Comprehensive Hemophilia Diagnostic and Treatment Center, University of North Carolina at Chapel Hill. Her curriculum vitae is available upon request.

Staff

Sue lives in Morrisville with her husband of 21 years. They have two daughters in college, one locally and one in Pennsylvania. Sue worked in the New Jersey casino industry for 25 years and left her position as Casino Controller at Caesar's Casino Hotel when she and the family relocated to North Carolina in 2006. Sue has volunteered in the non-profit sector for over 15 years in positions that include the United Way campaign chair for various casinos and president of the local youth sports leagues.

Sue helps with specialized programs in the area of aging and women with bleeding disorders, and with grant writing.  She has dysfibrinogenemia (Factor 1: bleeds and clots). Using her personal experiences and professional education, she is dedicated to increasing public awareness about women with bleeding disorders. Sue is working on research projects related to how and when adolescent girls and women with bleeding disorders enter the medical system, psycho-social issues related to women and bleeding disorders, and aging with hemophilia. Her curriculum vitae is available upon request.

Through the support of an educational grant by Bayer Healthcare, Guillermo serves as part-time Project Director of our Latin Union Program. He will work closely with the HTCs and HNC to develop educational programs, increase outreach, and provide communications to improve the health and well-being of the Latino population with bleeding disorders in North Carolina.  Guillermo was born in San Luis Potosi, Mexico, and has severe hemophilia.  He moved to the United States in 2003 with his wife, Abi.  He holds a master's degree in psychology and has experience working with domestic violence, mistreatment, and sexual abuse.  He has coordinated the Latin Union Program for HNC for the past year, conducting outreach and planning the content of educational sessions.  He also brings us skills in the area of educational brochure development and design.  Guillermo's mother founded – and is the current director of – the hemophilia service organization in San Luis Potosi.  He therefore has a thorough understanding of the important role that HNC can play in helping consumers advocate for better treatment and community services.  He has a strong desire to assist the Latino population in North Carolina and help HNC accomplish its mission. He may be reached by email or by phone at 704-605-4376.

Charlene joins us as a seasonal summer intern and assists with administrative needs, program development (teen & family programs), fundraising and our expansion into social media.  She is currently a junior at UNC Charlotte with a major in psychology.  She has volunteered with HNC since 2007 at events, worked on the development and implementation of programs and assists with the mailings that come from the HNC office.  Charlene is familiar with many of the individuals and families in the community and looks forward to her summer at HNC.

Unless mentioned otherwise above, no members of the HNC Board of Directors, staff, or their immediate families have any affiliation with industry related to the care and treatment of persons with bleeding disorders; nor are they a member of, or serving on the board of, any other organization within the bleeding disorders community; nor are other family members presently serving on the HNC Board of Directors.