Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
Copay Assistance and Accumulator Adjusters

Program made possible
by a grant from

National Hemophilia Foundation

Copay Assistance and Accumulator Adjusters

Virtual Advocacy

Monday, May 10, 2021 – 7:00pm-8:00pm


This event is over.

Do you use copay assistance?

A new report by The AIDS Institute shows that five out of six 2021 Marketplace plans in North Carolina have copay accumulator adjustment policies (AAPs).

Why does that matter to the bleeding disorders community?

If you’ve ever used copay assistance (also called coupons or factor assistance cards) to help afford your medicine, you know how important these programs are. Unfortunately, insurance companies have implemented Accumulator Adjuster Programs/Policies (AAPs) where the coupon or assistance fund you are using to help pay for your medicine is accepted by the insurance company, but the insurance does not count it towards your out of pocket expenses like they used to. So even though a company is assisting you, you will get stuck with the full cost.

Join Hemophilia of North Carolina (HNC) to learn more about this important topic, presented by Marla Feinstein, Senior Policy & Healthcare Analyst at the National Hemophilia Foundation (NHF). Marla will give an overview of the issue, how it impacts you, and what other states are doing about it. Following Marla, HNC staff will share what is being done on the state level to stop insurance companies from doing this.

Marla is a native of New York, and graduate of Boston University where she was a trustee scholar. She completed her graduate work in physiology and molecular biophysics at the University of Washington in Seattle where she was awarded a National Institute of Health pre-doctoral training fellowship. She presented and published extensively throughout her time in academic science. In 2011, she completed a MPH in health policy from Columbia University Mailman School of Public Health. While at Columbia, she researched and published articles about state and federal health policy issues affecting the under- and un-insured and was finalist for the John and Kathleen Gorman Public Health Humanitarian Award. In addition she was a consultant for the NYS Governor’s office and Department of Health.

Marla is currently the senior policy and healthcare analyst for the National Hemophilia Foundation. As an analyst, She has been instrumental in advocating for the bleeding disorders community at the national and state level. Her current efforts focus on ensuring access to care for individuals with bleeding disorders. She has presented on behalf of NHF at numerous national and community-based meetings of government and industry stakeholders.

HNC consumer members who attend this event will receive a gift card for DoorDash, GrubHub, or Uber Eats ($15 per person, $40 max per family). Gift cards will be distributed by email at the conclusion of the event. Note: Gift cards are available only to HNC members who live in North Carolina or receive care at a North Carolina treatment center. Persons employed by a pharmaceutical company, specialty pharmacy or home care company, or who work for a bleeding disorders treatment center are not eligible.

Please register by Sunday, May 9, 2021. If you have any questions, contact the HNC Office at events@hemophilia-nc.org, or by phone at 919-319-0014.


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HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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 This page was last modified on Monday, April 26th, 2021.