Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
919-319-0014
Advocacy: Hear from Your Peers

Program made possible
by a grant from

National Hemophilia Foundation

Advocacy: Hear from Your Peers

Virtual Advocacy

Wednesday, April 28, 2021 – 7:00pm-8:00pm

VIRTUAL EVENT

This event is over.


Have you ever wondered “Why does Hemophilia of North Carolina keep asking me to get involved in advocacy? I have no experience, so they aren’t really asking me.” How about “What difference can my story really make when the government is so big” or “What does it even mean to advocate?”

Join us and hear from Randi Clites, a bleeding disorders community member and former Member of the Ohio House of Representatives. Randi will share about her experiences within the bleeding disorders community, what inspired and motivated her to begin advocating, and how sharing her story led to a passion of inspiring big changes, which included running for public office!

We will also hear from Nathan Schaefer, Vice President of Public Policy at the National Hemophilia Foundation. He will share his experiences in working with the bleeding disorders community across the country -- from those with advocacy backgrounds to those who have never stepped foot in a legislative office before. Nathan will also help lead the Q&A with Randi.

So please join us for this informal, interactive session -- to learn how anyone can advocate, no matter their background or experience, why advocacy matters, and what difference it has made for the bleeding disorders community.

HNC consumer members who attend this event will receive a gift card for DoorDash, GrubHub, or Uber Eats ($15 per person, $40 max per family). Gift cards will be distributed by email at the conclusion of the event. Note: Gift cards are available only to HNC members who live in North Carolina or receive care at a North Carolina treatment center. Persons employed by a pharmaceutical company, specialty pharmacy or home care company, or who work for a bleeding disorders treatment center are not eligible.

Please register by Tuesday, April 27, 2021. If you have any questions, contact the HNC Office at events@hemophilia-nc.org, or by phone at 919-319-0014.

 



Return to Recent Events page

HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
 Indicates a link to an external site (outside of HNC)
https://www.hemophilia-nc.org/Advocacy/2021/peers.php
 This page was last modified on Monday, April 19th, 2021.