Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)

HNC Annual Meeting

Saturday May 30, 2009

Hilton Raleigh-Durham Airport
at Research Triangle Park
Durham, NC

A Trip Around the World!

HNC held its 2009 Annual Meeting on Saturday, May 30th where over 100 members were treated to a trip around the world without leaving the state! The theme this year was Who We Are: A Look at NC and Beyond. The day began with an informative history of North Carolina and bleeding disorders that was presented by HNC President, Richard Atwood. This was followed with outstanding presentations by Carl Weixler, who shared information about the Hemophilia Federation of America, Ray Stanhope, who spoke on the initiatives and efforts by the National Hemophilia Foundation and Mike Rosenthal, of the World Federation of Hemophilia who spoke about international challenges of finding treatment for all.

Laurie Kelley then spoke with humor and passion about her experiences nationally and internationally on the care and treatment of bleeding disorders. In one hour, we visited the Philippines, Dominican Republic, Romania, India, Zimbabwe and Belize! Members enjoyed Laurie's fascinating and empowering stories about her visits to these countries and work with Project Share and Save One Life – humanitarian programs set up by Laurie to assist individuals with bleeding disorders around the world.

After lunch, we enjoyed an excellent panel discussion on plasma-derived and recombinant products. Drs. Harold R. Roberts, Alice D. Ma and Albert Farrugia presented information on the different therapies and shared their expertise in this important subject with members in the audience. Everyone came away well informed on this topic and confident that they can have an educated discussion on product choice with their health care provider.

Our general business meeting was held and the election of board members took place along with an update of HNC business. New board members Warren Ingram and Scott Andrews were elected for two-year terms. Existing members, Leonard Poe, Kathy Register and Jeannie Adair were elected for new two-year terms.

Susan Cutter of the Penn Comprehensive Hemophilia and Thrombosis Center presented The Financial Factor: Managing the Costs of Hemophilia. The program covered the importance of knowing the cost of your treatment, having a plan of action and valuable insurance information.

The programming for the adults was closed out with a call to action by Leonard Poe, HNC VP Advocacy Chair who encouraged everyone to attend the upcoming HNC Legislative Day and get involved in this very critical year for health care reform.

The children had a great time in the morning with Judy Igelman and her team of volunteers at the Teddy Bear Hospital. They built bears, learned about bleeding disorders and had a great time – thank you Judy and your team of Nurses! In the afternoon, the children worked with a group of educators from Abrakadoodle on art projects from around the world.

Our teen group was a little shy on attendance but NYLI members Shelly Mattson and Patrick Tomlinson did a super job of working with the group and came up with some terrific ideas on future programs. Our thanks to Shelly and Patrick for taking the time out of their busy schedules to attend our meeting and share their experiences with our younger members.

After the meeting, members were invited to attend a baseball game at the Durham Bulls Athletic Park where the Bulls took on the Buffalo Bisons!

Our Valued Volunteers

On the night before the HNC Annual Meeting, a special invitation dinner was held for individuals who have volunteered their time, talent and resources to help the organization during the past year. They enjoyed keynote speaker, Dan Litz, Executive Director of Community Health Charities NC, who spoke about the importance of volunteers to any non-profit and getting involved with the community. We are grateful to those individuals who have dedicated their time and effort to committees, fund-raising events and to be officers and directors of the organization. They are the key to our success – thank you!

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