Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
2014 HNC Annual Meeting

HNC Annual Meeting

Saturday May 3, 2014, 8:30am-5:30pm

Omni Charlotte Hotel
132 E Trade Street
Charlotte, NC 28202

The Hemophilia of North Carolina annual meeting will have programs for children ages 2-11, and teens ages 12-17. Breakfast, lunch, and refreshments will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

* registration is closed

Come out and join us for Hemophilia of North Carolina’s 41st Annual Meeting. As always, this is a great opportunity for you to network with fellow members and to hear from the experts.

Pat Torrey (“Big Dog”) will be kicking off the Annual Meeting with a fun, interactive session. Pat has worked with our teens on multiple occasions and can also be found presenting at a variety of national bleeding disorder conferences. Pat Torrey will help us set the stage for this weekend. We'll be playing hard, getting to know one another, and trying new things. Prepare to get up and move! His program is made possible through generous funding by Pfizer.

Program Overview

(Speakers and topics subject to change.)
A more complete agenda is available for download [pdf/206kb]

* General Sessions

  • Orientation for First-time Attendees (see below for important information)
  • Annual Meeting Welcome: “Let’s Play”
    Pat “Big Dog” Torrey
  • “My Life, Our Future”
    panel discussion with NHF representatives
  • A Look into Genetic Research
    a panel discussion with Kristy Lee, MS – Certified Genetic Counselor at UNC School of Medicine, Department of Genetics
  • Advocacy in North Carolina
    James Romano ‐ Patient Services Inc.
    Leonard Poe – HNC Vice President and Advocacy Chair

* Meeting of the Membership

  • Annual and Financial Reports
  • Election of Members of the Board of Directors

* Breakout Sessions


  • HOPE (for parents of children with bleeding disorders): "Steps 4 Living" and other resources
    Gillian Schultz – HNC
    Sally Wright, MSW, LCSW – Clinical Program Manager, UNC Hemophilia Treatment Center
  • SOAR (for women and girls with bleeding disorders)
    Crystal Hoernlein – HNC
  • Blood Brotherhood (for adult men with bleeding disorders)
    Michael Armstrong, MD, PhD – Assistant Professor, Duke University
  • Spouses and Loved Ones
    Sharon Ingram, MA, HS-BCP


  • Young Children and Bleeding Disorders (round table discussion)
    Anita Smith, PNP – Nurse Practitioner, Wake Forest University Hemophilia Treatment Center
    Kelly Cribbs – HNC
    Gillian Schultz – HNC
  • Transition to Adulthood
    Nikita Lyons Murry – Biogen Idec
  • Aging with Grace
    Sally Wright, MSW, LCSW – Clinical Program Manager, UNC Hemophilia Treatment Center
    George McCoy – HNC

* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you qualify as a first-time attendee and will be driving more than 60 miles to attend the 8:30am discussion, please contact the HNC office to secure a hotel room for Friday night. In addition, we are offering BP gas cards for first-time attendees to help with your travel costs. These will be handed out during the session so don’t miss out! We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must contact HNC about a hotel room on or before April 11th.

* Children's Program (Ages 2-11)

We will have childcare for kids (ages 2-11) located in breakout rooms next to the main session. Soon we will announce all the fun planned for our favorite little advocates!

* Teen Program (Ages 12-17)

Leading Edge: Gaming the System – Learn how to develop self-confidence, awareness and understanding of individual power, and an increase in personal responsibility for one’s self and self-treatment for adolescents and young adults in the bleeding disorder community. The program is experiential in nature and important life lessons will be delivered through fun games and unique experiences. This program is for teens and young adults interested in the development of their potential. This year we’re focused on helping participants delve into the world of resilience and learn how to navigate interpersonal systems to achieve their life goals. Prepare to have fun and laugh, be engaged, and leave with valuable new tools to take home. Don’t worry you won’t be sitting in your seats long… This program is made possible through generous funding from Pfizer.

All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

* Afterwards

In addition to our usual door prizes, we will have a separate raffle (no cost to enter) for anyone interested in winning a trip to the National Hemophilia Foundation (NHF) Annual Meeting. The NHF Annual Meeting will be in Washington DC from September 18-20 so save the dates if you plan to enter the raffle! Here’s what you could win, just by attending the HNC Annual Meeting:

  • $400 for travel
  • Hotel room for four nights at conference hotel
  • Two adult registrations, two children registrations for conference

You must be present to win. Thank you to the NHF for their support in making this possible!

Strike CityEvening Fun: After the HNC Annual Meeting wraps up and all the door prizes have been won, we hope you’ll join us at Strike City for some food and fun. Only a 5-minute walk from the Omni, we’ll have two hours to enjoy all that Strike City has to offer! In addition to bowling, you’ll be able to play other games like corn hole and pool. We’ll also have some tables with playing cards and board games. Food and soft drinks will be available!

* Accommodations

The Omni Charlotte Hotel has reserved a block of rooms for those who may wish to stay over on Friday and/or Saturday nights. The cost is from $129/night. The Omni has a customized web page for our meeting where guests can make or modify a reservation.

The room reservation deadline is Friday, April 11.

* Parking at the Omni Charlotte Hotel

  • On-site parking: $20/day
  • Valet parking, fee: $22/day
  • Off-site parking: $20/day (average)

HNC will provide attendees with vouchers to pay for on-site parking. Vouchers will be distributed during the last afternoon break. On-site parking is available on a first-come, first-served basis.

* Directions to the Omni Charlotte Hotel (Map)

132 E Trade Street
Charlotte, NC

  • From the NORTH – via I-85 & I-77 South:
    • Take I-77 South to Exit 10B (Trade Street).
    • Go east on Trade Street toward Uptown for approximately one mile, crossing the Square at Tryon Street.
    • Hotel is located on the corner.
    • The motor lobby entrance of the hotel is located half a block past Tryon Street on the right.
  • From the SOUTH – via I-77 North:
    • Take I-77 North to Exit 10 (Trade Street).
    • Go east on Trade Street toward Uptown for approximately one mile, crossing the Square at Trade & Tryon Streets.
    • After going through the intersection, the entrance to the motor lobby of the hotel is the second driveway on the right.
  • From the EAST – via Hwy 74 West:
    • Take Hwy 74 to I-277.
    • Take the College Street exit.
    • Proceed toward Uptown and make a left onto Trade Street.
    • The motor lobby entrance of the hotel is on the left.
  • From the WEST – via I-85 North:
    • Take I-85 North to Exit 36, NC-16/Brookshire Boulevard exit, toward US-74 East/Downtown.
    • Merge onto NC-16 South toward Charlotte/Bank of America Stadium.
    • Merge onto I-77 South.
    • Take I-77 South to exit 10B Trade Street.
    • Go East on Trade Street toward Uptown for approximately one mile, crossing the Square at Tryon & Trade Streets.
    • The Hotel is on the corner.
    • The motor lobby entrance of the hotel is one half block past Tryon Street on the right.

Return to previous page