Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
2015 HNC Annual Meeting

The Hemophilia of North Carolina annual meeting will have child care for all ages, with programs for children ages 2-11, and teens ages 12-17. Breakfast, lunch, refreshments, child care, and Saturday night accommodations will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

* registration is closed

HNC Annual Meeting

Saturday, May 2, 2015, 8:30am-5:30pm

Holiday Inn Fayetteville-Bordeaux
1707 Owen Drive
Fayetteville, NC 28304

Come out and join us for Hemophilia of North Carolina’s 42nd Annual Meeting. As always, this is a great opportunity for you to network with fellow members and to hear from the experts.

New! Dinner, overnight stay, and breakfast on Sunday – After the meeting we hope you will to stay for dinner and some special entertainment. HNC members are invited to stay overnight as HNC's guest, then have breakfast on Sunday and head home fresh and fulfilled. See Accommodations section, below, for additional room availability options.


Go to: First Time Attendees  *  Bylaws Change Proposal  *  Program Overview  *   Child Care & Youth Programs  *  Afterwards   *   Accommodations



* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about a hotel room for Friday night and about BP gas cards to help with your travel costs (these will be handed out during the session).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must register on or before April 16th in order to secure a hotel room.



* IMPORTANT: Changes to the HNC Bylaws will be presented to the membership for discussion.

The HNC Board is proposing a new bylaws structure that will help HNC continue to grow and better support its mission. The current bylaws were a good fit when HNC was a smaller organization, but HNC has grown substantially in the last decade. With that growth has come the need for more appropriate bylaws, including robust safeguards and accountability, and a move from a membership organization to a self-perpetuating board. The end goal, of course, is for HNC to best serve all people in North Carolina with bleeding disorders.

The complete proposed new bylaws, along with a side-by-side comparison with the existing bylaws, can be found here.



Program Overview

(Speakers and topics subject to change.)
A complete program, with agenda, Board of Directors, and sponsor list, is available for download [pdf/1.9mb]

  • General Sessions
    • Telling Our Stories
      • Guest Speakers
        • Jim Grimsley – novelist and playwright from Pollacksville, NC
        • Craig McLaughlin – writer, editor, performer, communications consultant
        • Shelby Smoak – author of Bleeder: A Memoir
    • Beyond Our Community: Breaking Barriers, Reaching Dreams, and Staying Positive
      – Chad Brown
      – Matthew Compton
      – Jashua Garrison
      – Sharon Ingram, MA, HS-BCP
      – Jecorei Lyons
      – George McCoy
    • Door Prizes and Raffle Drawings
  • Meeting of the Membership

    * Steven Peretti, PhD
    – HNC President

  • Breakout Sessions
    • Morning
      • Writing Workshop
        – Jim Grimsley, Craig McLaughlin, Shelby Smoak
      • Meditation for Stress Management
      • El Poder de Empoderamiento (The Power of Empowerment) (en Español)
        – Liliana Gomez

        HNC Focus Programs

      • HOPEfor parents of children with bleeding disorders
        Steps 4 Living & Other Resources
        – Gillian Schultz
      • SOARfor women and girls with bleeding disorders
      • Blood Brotherhoodfor adult men with bleeding disorders
      • Spouses and Loved Ones
        Supporting our partners
        – Sharon Ingram, MA, HS-BCP
    • Afternoon
      • Constructive Conversations
        – Daysi Fardales, MSN, ARNP-C
      • Auto Defensa – (Self-Advocacy) (en Español)
        – Karla Zevallos
      • Living Well with Inhibitors



* Child Care and Children's Program *

We will have child care for all ages available in breakout rooms near to the main session hall.

We will have programs and activities for kids ages 2-11, also in breakout rooms near the main session hall. Soon we will announce all the fun planned for our favorite little advocates!

* Teen Program (Ages 12-17) *

The morning will feature a special program, Cracking the Code, led by Nikita Lyons Murry of Biogen. After lunch we'll all go bowling!

All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.



* Afterwards *

* Door Prizes and Raffle Drawings *

* Dinner & Camp Academy *

We hope everyone will stay after the meeting for an elegant dinner at the hotel. After dinner, we’ll join facilitators from Beyond Recreation in an exciting evening of circus arts activities, from plate spinning to partner juggling, and much more!

Special thanks to Grifols for sponsoring the raffle Grand Prize!



* Accommodations *

The Holiday Inn Fayetteville-Bordeaux has reserved a block of rooms for those who may wish to stay over on Friday(*) and/or Saturday(*) nights. The cost is from $89/night. Call 910-323-0111 and mention group code HNC.

The room reservation deadline is Monday, April 20.

(*)note: HNC members who are attending their first HNC Annual Meeting may stay overnight Friday as HNC's guest. We do ask that you attend the First-Time Attendee Orientation session on Saturday from 8:30-9:00am. See "First-Time Attendees" above.

(*)note: All HNC members are invited to stay overnight Saturday as HNC's guest.

Sponsorship opportunities are available. Please contact HNC at (800)990-5557 or by email at info@hemophilia-nc.org for more information.

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