Keynote Session: In the Pipeline

Steven Pipe, MD, Pediatric Medical Director, Hemophilia and Coagulation Disorders Program, Director, Special Coagulation Laboratory, University of Michigan.

Bad Blood: A Cautionary Tale – a screening of a documentary film by Marilyn Ness and Sheila Curran Bernard.

Your Impact on the Bleeding Disorders Community

First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about a hotel room for Friday night and about gas cards to help with your travel costs (these will be handed out at the end of the day).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must register on or before Friday, February 1st, 2019 in order to secure a hotel room.

• General Sessions
  • Keynote Session: In the Pipeline – Steven Pipe, MD, Pediatric Medical Director, Hemophilia and Coagulation Disorders Program, Director, Special Coagulation Laboratory, University of Michigan.
  • Bad Blood: A Cautionary Tale – a screening of a documentary film by Marilyn Ness and Sheila Curran Bernard.

    Bad Blood chronicles how a "miracle" treatment for hemophilia became an agent of death for 10,000 Americans. Faced with evidence that pharmaceutical companies and government regulators knew the product was contaminated with deadly viruses, the hemophilia community launched a powerful and inspiring fight to right the system that failed them and to make it safer for all.

  • Your Impact in the Bleeding Disorders Community – how you can have a positive impact on your own life and the lives around you through HNC.
• Meeting of the Membership
  • Annual and Financial Reports
  • Election of Members of the Board of Directors
• Breakout Sessions
  • Morning
    • Unión Latina – Latin Union, en español
    • Von Willebrand Disease
    • Factor Function: How Half-life Affects You
    • Rare Bleeding Disorders Round-table
  • Afternoon
    • HOPE – for parents of children with bleeding disorders
    • SOAR – for women and girls with bleeding disorders
    • Blood Brotherhood – for adult men with bleeding disorders
    • Spouses, Caregivers, and Loved Ones

Child Care and Youth Programs

We will have child care for all ages. Daycare and babysitting will be provided by Nannys Plus Mobile Childcare Service.

Child care for infants and toddlers age 3 and under will be available in breakout rooms near the main session hall.

Children 4-8 & 9-12: Children will participate in a variety of activities throughout the day, including "My Amazing Blood" (ages 4-8) and "Junior Scientist" (ages 9-12) where they will learn more about their bleeding disorder, plus a magic show, crafts, games, and more. The children will be either separated by age group or all together depending on the specific activities.

Teen Program (Ages 13-17)

Morning programs will include sessions on how to be an advocate, and using ultrasound in the care of bleeding disorders. After lunch the teens will depart for the Inner Peaks Climbing Center, a 13,000 square foot indoor rock climbing facility.

Please indicate in the registration form comments if your teen will NOT be participating in the teen programming. Parents of all rock climbing participants must complete an Inner Peaks E-WAIVER.

Participants should bring or wear comfortable clothes suitable for rock climbing. Athletic shorts and a T-shirt are recommended, along with closed-toe athletic shoes. All instruction will be provided by certified instructors.

All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

Afterwards

Hotel Information

The Sheraton Charlotte Airport Hotel is offering a special room rate of $129/night. You can make a reservation online, or call the hotel at 800-325-3535 and mention Hemophilia of North Carolina Annual Meeting. You must make your reservation by Friday, February 1st, 2019 to guarantee this rate.