Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
HNC 48th *Virtual* Annual Meeting

HNC 48th *Virtual* Annual Meeting

A Time of Change

Saturday, March 6, 2021 – Sunday, March 21, 2021

VIRTUAL EVENT: Sessions on March 6 & 7, March 13 & 14, and March 20 & 21.

This event is over.

The final day to register is Wednesday, March 3.

Informacion en español

This year's Annual Meeting is going virtual! The Hemophilia of North Carolina (HNC) Annual Meeting is the state's largest gathering for the bleeding disorders community and a terrific educational opportunity. Throughout the first three weekends of March, join us for sessions about living with and caring for someone with a bleeding disorder. There will be a mix of sessions for everyone and time to connect with the bleeding disorders community from around North Carolina. Come for one day or come for them all.

Sessions will take place on March 6 and 7, March 13 and 14, and March 20 and 21. See below for the agenda. All sessions will be held on HNC’s Zoom platform. Zoom allows you to sign in from your computer, cell phone, or tablet. There will be time to connect with other families using this feature.

Throughout the three weekends, there will be time to learn more about our sponsors and the products and services that are available to the bleeding disorders community.

You will receive a gift card to DoorDash, GrubHub, or Uber Eats for each day that you attend ($10 per person, $40 max per family).

Please register by Monday, February 22, in order to receive a goody box from HNC. The final day to register is Wednesday, March 3, 2021.

If you have any questions, contact the HNC Office at events@hemophilia-nc.org, or by phone at 919-319-0014.



* First-time Attendees

Once again, we’ll have a special session in the morning of the first day for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 9:30am-10:00am for the “First-time Attendee” session.

If you are a first-time attendee, please indicate this on your registration application form.

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

Agenda (tentative schedule, subject to change)
More details, including specific times and titles of sessions will be added to the website as they are confirmed.

Session Audience Color Codes
General Sessions Blood Brotherhood (adult men with a bleeding disorder)
HOPE (Parents with children with a bleeding disorder) SOAR (women and girls with a bleeding disorder)
Unión Latina (en español) General Sessions (with Spanish translation)
Hemophilia A and B Rarer Bleeding Disorders
Von Willebrand Disease Teens
Teens and Parents Children
Sponsor Open House Networking Opportunities
Saturday, March 6
9:00am-9:30am First Time Attendee Session
Gillian Schultz, HNC
9:30am-10:30am Welcome and Sponsor Introductions
HNC Staff and Annual Meeting Sponsors
10:30am-11:30am A Time of Change: How the Bleeding Disorders Community Has Changed Over the Years
Panelists: Nigel Key, MBChB, FRCP, UNC School of Medicine; Katherine Register; Kelly Hoots, William Dewaine; Dana Strickland
(Interpretación al español disponible)
11:30am-12:30pm Brave Is in Our Blood
Marcus Orr, Medexus Pharma
(Interpretación al español disponible)
1:00pm-2:00pm Mastering Self-Care During COVID-19
Robert Friedman, MA
2:00pm-3:30pm Sponsor Open House
Platinum Sponsors, Half of Gold Sponsors, Half of Silver Sponsors
7:00pm-8:00pm Online Virtual Escape Room: Moriarty’s Parlor
Sunday, March 7
Pick One
Hemophilia A-Z
Besty Koval, Takeda
Overview of Von Willebrand Disease
Ashley Hinson, MD, Levine Childrens
Rare Bleeding Disorders
Mary Ann Knovich, MD, Levine Cancer Institute
Pick One
Empowered: Tools for Self-Advocacy
Rachel Cooper-Leal, Pfizer
Cracking the Code
Xaviette Pointer-Kincy, Sanofi Genzyme
2:45pm-4:15pm Sponsor Open House
Platinum Sponsors, Half of Gold Sponsors, Half of Silver Sponsors
5:00pm-6:00pm Physical Fitness Session: Topic TBA
Chris Rain
Saturday, March 13
10:00am-11:00am Evaluating Choices in a Changing Insurance Market
Marla Feinstein, NHF; Kollet Koulianos, MBA, NHF
11:00am-12:00pm Making Medicare Work for You
Kathleen Holt, MBA, JD
12:00pm-1:00pm The State of HNC and 2021 Advocacy Initiatives
HNC Staff
1:00pm-2:00pm Sponsor Open House
Platinum Sponsors, Half of Gold Sponsors
Sunday, March 14
12:00pm-1:00pm 8 Steps to Adulting
Dan Bull, Novo Nordisk
1:00pm-2:00pm Navigating Through Life Transitions: The Story of Mother and Son
Lori and Cody Kunkel, CSL Behring Community Advocates
2:00pm-3:00pm Teen Games – The Price is Right and Kahoot! How Much Do You Know?!
HNC Staff
3:15pm-4:15pm Science Demonstration – How Blood Clots
Gillian Schultz, HNC
Saturday, March 20
Pick One
Blood Brotherhood
Legal Rights for Bleeding Disorders
Kimberly Ramseur, HFA
Health and Wellness for Children with Bleeding Disorders
Jennifer Newman, PT, UNC School of Medicine; Lora Joyner, ECU
Women with Bleeding Disorders
Jennifer Howell, MD, UNC School of Medicine; Yasmina Abajas, MD, UNC School of Medicine
Unión Latina
Haz lo que te mueve: Mantenerse activo
(Do What Moves You: Staying Active)
Patricia Espinosa-Thomson, Takeda
Pick One
Blood Brotherhood
Pain Management
Linda Peacock, Bayer
Parent Support Roundtable
Gillian Schultz, HNC
Women's Support Roundtable
Charlene Cowell, HNC
Caregivers' Support Roundtable
Kathy Register
3:30pm-4:30pm Sponsor Open House
Platinum Sponsors, Half of Gold Sponsors
5:00pm-7:00pm Painting Party – Wine and Design
Sunday, March 21
10:00am-11:00am Frog Files
NC Museum of Life and Sciences
1:00pm-2:30pm History of Bias and Health Equity Panel
Christie VanHorne, Kelly Cribbs, Lizbeth Munoz, Thomas Savage
(Interpretación al español disponible)
2:30pm-3:30pm COVID-19 Town Hall
Scott Commins, MD, UNC School of Medicine; Bobby Tran, MD, MSc, Emory University School of Medicine;
(Interpretación al español disponible)
3:30pm-4:00pm Closing and Wrap-up
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Sponsorship opportunities are available. Please contact HNC at 919-319-0014 or by email at events@hemophilia-nc.org for more information.

HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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 This page was last modified on Tuesday, February 23rd, 2021.