Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
HNC Family Retreat

HNC Family Retreat

Friday, September 11, 2020 – Sunday, September 20, 2020


This event is over.

Hemophilia of North Carolina's (HNC) popular Family Retreat is going virtual this fall! Although we are not going to be able to get together in person, we are planning a fun event for the entire family. All educational programs are geared towards families who have children diagnosed with a bleeding disorder.

Sessions will take place the evening of Friday, September 11; in the morning and early afternoon on Saturday, September 12; the afternoon of Sunday, September 13; the evening of Thursday, September 17; and the afternoon of Sunday, September 20. All sessions will take place on HNC’s Zoom platform. Zoom allows you to sign in from your computer, cell phone, or tablet. There will be time to connect with other families using this feature. Some of the activities already planned for the kids include tie-dying and a fun science experiment to see how blood clots. Other sessions are being planned for parents and children and will be announced soon.

All families who attend will receive an egift card that can be redeemed for DoorDash, Grubhub, or Uber Eats. Please indicate in your registration which egift card you would like.

We hope that you will be able to attend all sessions. However, we understand that since the event is on multiple days spread over more than a week, you may have commitments that prevent you from attending all sessions. If you don't think you will be able to attend each day, please indicate this in the comments section of your registration.

Registration is required by Monday, September 7, 2020. Applicants will be accepted on a first-come first-served basis. Priority will be given to those who have a child with a bleeding disorder and to those not affiliated with a specialty pharmacy, home care, or pharmaceutical company that caters to the bleeding disorders community.

If you have any questions, contact the HNC Office at events@hemophilia-nc.org, or by phone at 919-319-0014.

Agenda (tentative schedule, subject to change)

Friday, September 11

Evening Session

  • 6:30pm-7:30pm – Family Kahoot! Game with Kids and Parents

Saturday, September 12

Morning and Afternoon Sessions

  • 10:00am-10:30am – Opening Announcements and Sponsor Introductions
  • 10:30am-11:30am – Braving Change – Tanya Stephenson, Sanofi Genzyme
  • 11:30am-12:30pm – Scavenger Hunt
  • 12:30pm-1:30pm – Virtual Exhibit

Sunday, September 13

Afternoon Session

  • 1:00pm-2:00pm – Building Connections in a Time of Social Distance – Betsy Koval, Takeda
  • 2:00pm-2:30pm – Tie Dying (all supplies will be provided)
  • 2:30pm-3:30pm – Virtual Exhibit
  • 3:30pm-4:30pm – Parent Chat

Thursday, September 17

Evening Session

  • 6:30pm-7:30pm – Navigating Virtual Schools – Information about 504 plans and navigating school during COVID-19 – Dr. Juliana Bloom, Hemophilia Federation of America

Sunday, September 20

Afternoon Session

  • 1:00pm-2:00pm – The Clotting Cascade – Virginia Chandler, Genentech
  • 2:00pm-3:00pm – Science Experiment – A program designed to teach children (and adults) about what happens with normal and abnormal clotting (all supplies will be provided) – Gillian Schultz, Hemophilia of North Carolina
  • 3:00pm-3:30pm – Closing Announcements
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HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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 This page was last modified on Monday, September 14th, 2020.