Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
919-319-0014
HNC SOAR Education Days

HNC SOAR Education Days

Tuesday, June 30, 2020 – Thursday, July 2, 2020

VIRTUAL EVENT

This event is over.


Hemophilia of North Carolina (HNC) invites all women with a bleeding disorder to join us for the SOAR Education Days, to be held in the comfort of your own home. The event has been rescheduled to take place on the evenings of June 30, July 1, and July 2. SOAR Education Days are open to women with a bleeding disorder (including carriers), teen girls and their moms, and moms or female caregivers of daughters with a bleeding disorder.

Sessions will include disease specific information about von Willebrand disease (VWD), hemophilia, and other rare bleeding disorders (including rare factor deficiencies and platelet disorders), treatment as a woman with a bleeding disorder, a fun art therapy session, and time to connect with other women during the women’s rap session.

We will be offering prizes and giveaways throughout the three days. Don’t miss out on this opportunity to connect with other women with a bleeding disorder. You must register by Tuesday, June 23.

Sessions will be held through the Zoom platform. Once you register, you will receive information, including links to join the Zoom sessions throughout the event. If you have any questions about using Zoom, please let us know.

Please register by Tuesday, June 23, 2020. If you have any questions, contact Gillian Schultz, HNC Program Manager, at soar@hemophilia-nc.org, or by phone at 919-272-6000.


Agenda (Subject to Change)

Sessions each night will start between 6:00pm-6:30pm and end between 8:30pm-9:00pm.

There will be prizes and giveaways throughout the three days and gift cards for dinner each night.

Tuesday, June 30

Simultaneous "break-out" sessions (you may choose either one):

  • Women and Bleeding Disorders – Sandy Puckett, RN, BSN, Diplomat Specialty Infusion Group
  • Art Therapy – Jane Kelly, Diplomat Specialty Infusion Group

Wednesday, July 1

Simultaneous "break-out" sessions (you may choose either of the three):

  • Rare Bleeding Disorders – Mary Ann Knovich, MD, Hemophilia Treatment Center at Levine Cancer Institute
  • Hemophilia in Women – Yasmina Abajas, MD, Hemophilia Treatment Center at UNC Chapel Hill
  • Von Willebrand Disease – Virginia Krauss, RN, MSN, Grifols

Thursday, July 2

  • Women's Roundtable Rap Session
SOAR is an HNC program for women and girls with a bleeding disorder, including those diagnosed with von Willebrand Disease, hemophilia A and B, rare factor deficiencies, platelet disorders, and carriers of any of these disorders (both symptomatic and non-symptomatic). The mission is to improve the quality of life for girls and women with bleeding disorders, so that they may SOAR to their full potential.
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HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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https://www.hemophilia-nc.org/SOAR/2020/e-days.php
 This page was last modified on Monday, June 15th, 2020.