Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
The Carolina Crew, 2018

Event is over.

2019 HNC-HSC Teen Retreat

at Camp Canaan
3111 Sand Island Road
Rock Hill, SC 29732

Saturday-Tuesday, June 29-July 2, 2019

For anyone age 13-18 who has a bleeding disorder or has a sister, brother or parent with a bleeding disorder.

Bring a friend!

Transportation Available

Schedule (pdf* 108kb)

Come spend a weekend with friends – new & old! We're planning a terrific weekend full of fun activities and sessions that will challenge you, inform you, and inspire you. Share your interests, passion, and ideas about how you can make a difference for yourself and in our community. Our programs will again be led by the amazing team from GutMonkey, and will include fun activities to promote self-advocacy and the importance of accepting change in an ever-changing world! Retreat activities will include kayaking and lots of time hang out with your friends around the pool.

Hemophilia of North Carolina and Hemophilia of South Carolina are offering this program to teen members free of charge. This includes lodging, busing, all meals and activities.

GutMonkey Program Description

Change is everywhere, constant, and inevitable. We dread it, and put our deepest hope in it, in the very same moment. Writers, artists and philosophers alike have been obsessed with change since the beginning of time. There are thousands of books, movies, and quotes whose central theme focuses on change. Rumi shares his wisdom by saying, “Yesterday I was clever, so I wanted to change the world. Today I am wise, so I am changing myself.” And we have all heard Ghandi’s famous quote, “Be the change that you wish to see in the world.” These, are tall orders. These, are lofty goals. And these, are the reasons we love to work with teens! Because we believe that teens are constantly trying to change the world, and themselves, for good. In this year’s Leading Edge Program we will take an intimate look at how to make change, intrapersonally and interpersonally, when change is hard to make. We will play, move, and explore, to uncover the relationship between our logical and emotional selves, and the role each plays in our journey to make change. We will investigate the ever changing elements of our environments and communities, to uncover potential barriers, and hidden boosts that we may encounter along the way. This experiential program designed specifically for teens will be fun and engaging, challenging and inspiring. All you need to do is bring a curious mind and a willingness to play, and we’ll uncover to magic of change making together.

Event Schedule

Transportation Schedule (pdf* 108kb)

  • Saturday, June 29
    • 5pm-6pm: Arrive in the evening
    • Dinner
    • Ice breaker and games
  • Sunday, June 30
    • All day: Team-building and group sessions led by GutMonkey; free time
    • Campfire and s'mores
  • Monday, July 1
    • All day: Team-building and group sessions led by GutMonkey; free time
    • Dinner and free time
  • Tuesday, July 2
    • Breakfast
    • Review & Suggestions
    • Boxed lunch and noon check-out

Meet Our Nurse Robin

Robin Jones is the South Carolina Hemophilia Treatment Center Nurse Coordinator and a Nurse Navigator for the Children’s Cancer and Blood Disorder Clinic. She has worked in the clinic since receiving her ADN in 2001. Since then, she received her BSN in 2004 and a dual master’s in nursing and health administration in 2015.

Robin has received certification as a pediatric nurse and a pediatric hematology/oncology nurse. She is an instructor for the Association of Pediatric Hematology/Oncology Biotherapy and Chemotherapy Provider course. Robin also provides infusion training for patients and their families. She does this in coordination with the SC Hemophilia Chapter yearly and during Camp Burnt Gin.

Robin has been a staff nurse at Camp Kemo since 2001 and for Camp Burnt Gin since 2010. Camp Kemo is a weeklong camp for children with cancer and Camp Burnt Gin is a camp for children with bleeding disorders. At Camp Burnt Gin, she holds a class at least twice during the week to help the children learn more about their diagnosis as well as train them on how to self-infuse.

Robin is a single mother to three children. She enjoys spending time with her family and crafting. She also enjoys being part of the hemophilia community and attending different events.

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HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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 This page was last modified on Tuesday, May 21st, 2019.