Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
919-319-0014

2021 Virtual Events


No need to go anywhere! Join us from the comfort of your home on your computer or phone through the Zoom video conference service. The first time you join a Zoom meeting you will be guided through the steps of installing the Zoom app on your computer, tablet, or phone. A camera is not required, but we'd really like to see you! You can also call in if you prefer (audio only).

Please register in advance for individual events. Unless otherwise noted, the registration deadline will be midnight on the day before the scheduled event. If you have any questions, contact the HNC Office at virtual.events@hemophilia-nc.org or by phone at 919-319-0014.


Previous Virtual Events

  • Women with Bleeding Disorders
         Educational Dinner
    Monday, June 28, 2021 – 7:00pm-8:00pm

    Join Hemophilia of North Carolina for an interactive session from Grifols, Women with Bleeding Disorders, led by Virginia Kraus, RN, MSN.


  • La importancia de los trastornos sanguíneos en las mujeres
    sábado, 26 de junio, 2021 – 4:00-5:00pm

    Únase a nosotros, desde la comodidad de su hogar, para un programa educativo sobre mujeres y niñas con trastornos sanguíneos. Patricia Espinosa-Thomson, educadora clínica bilingüe de Takeda, dirigirá HELLO TALK, La importancia de los trastornos sanguíneos en las mujeres. Las mujeres con trastornos sanguíneos enfrentan retos únicos que, con frecuencia, pueden no ser reconocidos o apreciados. Comprendan algunos de los desafíos especiales a los que se enfrentan las mujeres con trastornos sanguíneos e identifiquen opciones de apoyo emocional dentro de la comunidad.


  • Spotlight on Siblings
         Educational Dinner
    Wednesday, June 16, 2021 – 7:00pm-8:00pm

    Join Hemophilia of North Carolina for a Sanofi Genzyme CoRe Conversation, Spotlight on Siblings, presented by Xaviette Pointer-Kincy.


  • Virtual Legislative Day
         Advocate from the Comfort of Your Home
    Tuesday, May 25, 2021 – Throughout the day as your schedule allows
    Whether you have five minutes or thirty, we hope you’ll join us for Hemophilia of North Carolina’s (HNC’s) Virtual Legislative Day event. One of the greatest silver linings to hosting Legislative Day virtually is that HNC members from across the state can “attend” without any travel required. We hope to have voices from all across NC, from the mountains to the ocean, city to country, and everywhere in between. That means more NC legislators get to learn about the issues that are important to the bleeding disorders community.


  • Un esfuerzo conjunto
         Unidos para proteger las articulaciones
    sábado, 15 de mayo, 2021 – 1:00-2:30pm

    Únase a nosotros, desde la comodidad de su hogar, para un programa educativo sobre cómo cuidar de sí mismo y sus articulaciones. Patricia Espinosa-Thomson, educadora clínica bilingüe de Takeda, dirigirá HELLO TALK, Un esfuerzo conjunto: unidos para proteger las articulaciones. Se necesita un equipo (paciente, cuidador, profesional médico) para mantener la salud articular. Aprendan a mantener las articulaciones sanas, ayuden a tratar el daño articular y prevenirlo, si es necesario.


  • NC Medicaid Expansion: It's About Time!
    Thursday, May 13, 2021 – 7:00pm-8:00pm

    Most likely, you have some type of health insurance, especially if you have a bleeding disorder. But there are people in North Carolina who are uninsured, or under-insured, because of a lack of Medicaid Expansion. Hemophilia of North Carolina (HNC) has long recognized the dangers of having even one person with a bleeding disorder that falls into this gap. Therefore, HNC and its members have been advocating since 2015 for North Carolina to expand Medicaid and will be advocating for Medicaid Expansion at Legislative Day on May 25.


  • Copay Assistance and Accumulator Adjusters
         Virtual Advocacy
    Monday, May 10, 2021 – 7:00pm-8:00pm

    A new report by The AIDS Institute shows that five out of six 2021 Marketplace plans in North Carolina have copay accumulator adjustment policies (AAPs). Why does that matter to the bleeding disorders community?


  • HNC Consumer Medical Symposium
    Saturday, May 1, 2021 – 10:00am-5:00pm

    Join Hemophilia of North Carolina (HNC) for the first Consumer Medical Symposium. Geared toward patients with a bleeding disorder and caregivers, this event is designed to provide you with an in-depth look at science of bleeding disorders as well at the importance of comprehensive care for bleeding disorders


  • Advocacy: Hear from Your Peers
         Virtual Advocacy
    Wednesday, April 28, 2021 – 7:00pm-8:00pm

    Have you ever wondered “Why does Hemophilia of North Carolina keep asking me to get involved in advocacy? I have no experience, so they aren’t really asking me.” How about “What difference can my story really make when the government is so big” or “What does it even mean to advocate?”


  • Pre-Festival Game Night
    Monday, April 12, 2021 – 7:00pm-8:00pm

    Join Hemophilia of North Carolina (HNC) for a night of fun and games! This is one of HNC’s pre Charlotte Family Festival & Walk for Bleeding Disorders event to get you excited about the virtual celebration on April 17.


  • Bicycle Safety Event
         For Children 6-12 and Parents
    Saturday, April 3, 2021 – 2:00pm-3:00pm

    Join Hemophilia of North Carolina (HNC) for the first Consumer Medical Symposium. Geared toward patients with a bleeding disorder and caregivers, this event is designed to provide you with an in-depth look at science of bleeding disorders as well at the importance of comprehensive care for bleeding disorders


  • HNC 48th *Virtual* Annual Meeting
         A Time of Change
    Saturday, March 6, 2021 – March 21, 2021 (sessions on three successive weekends)

    This year’s Annual Meeting is going virtual! Throughout the month of March, join us for sessions about living with and caring for someone with a bleeding disorder. There will be a mix of sessions for everyone and time to connect with the bleeding disorders community from around North Carolina.


  • Comprensión de los ajustadores de acumuladores (AAPs)
    jueves, 25 de febrero, 2021 – 7:00-8:00pm

    Invitamos a los miembros de la comunidad para que nos acompañen a conocer los programas de ajustedores de acumuladores ("Accumulator Adjuster Programs" – AAPs). Bajo un AAP, un administrador de beneficios de farmacia puede aceptar asistencia de copago a terceros para gastos de su propio bolsillo asociados con un medicamento recetado, pero luego este no cuenta como parte de la cantidad del deducible general del paciente. Esta es una nueva tendencia de seguros que ha tenido un impacto negativo en los pacientes.


  • Understanding Accumulator Adjusters
         Virtual Advocacy
    Thursday, February 25, 2021 – 7:00pm-8:00pm

    We invite community members to join us to learn about Accumulator Adjuster Programs (AAP). Under an AAP, a pharmacy benefit manager can accept third-party co-pay assistance for out-of-pocket costs associated with a prescribed drug but then doesn’t credit that amount toward the patient’s overall deductible. This is an emerging insurance trend that has been negatively impacting patients.


  • Virtual Educational Dinner
         Expect the Unexpected
    Thursday, February 18, 2021 – 7:00pm-8:00pm

    Emergency room staff, including physicians, may have little experience in the management of patients with bleeding disorders because they are rare conditions. This presentation will help you avoid and prepare for a possible trip to the ER, anytime, anywhere – even when traveling or during a natural disaster.


  • Virtual Women’s Luncheon and Painting Project
         An HNC SOAR Project Event
    Saturday, February 13, 2021 – 12:30pm-2:00pm

    Join Hemophilia of North Carolina for a Women’s Luncheon and educational presentation, Von Wille-What? Diagnosis with a bleeding disorder as an adult. A "board and brush" craft project will follow the program.


  • Virtual Educational Dinner
         Constructive Conversations
    Thursday, February 4, 2021 – 7:00pm-8:00pm

    Gain an understanding of how motivational interviewing helps individuals living with hemophilia interact with caregivers and health care providers.


  • Virtual Educational Event: Family Feud
    Saturday, January 16, 2021 – 4:00pm-5:00pm

    Who loves a good game? Join us for the first event of 2021, virtual Family Feud, and find out just how much you know about bleeding disorders. Bring the entire family for an afternoon of fun and community, and just a little bit of competition!




HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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https://www.hemophilia-nc.org/VirtualEvents/2021/
 This page was last modified on Thursday, January 28th, 2021.