Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
919-319-0014

2021 Virtual Events


No need to go anywhere! Join us from the comfort of your home on your computer or phone through the Zoom video conference service. The first time you join a Zoom meeting you will be guided through the steps of installing the Zoom app on your computer, tablet, or phone. A camera is not required, but we'd really like to see you! You can also call in if you prefer (audio only).

Please register in advance for individual events. Unless otherwise noted, the registration deadline will be midnight on the day before the scheduled event. If you have any questions, contact the HNC Office at virtual.events@hemophilia-nc.org or by phone at 919-319-0014.


  • Advocacy: Hear from Your Peers
         Virtual Advocacy
    Wednesday, April 28, 2021 – 7:00pm-8:00pm

    Have you ever wondered “Why does Hemophilia of North Carolina keep asking me to get involved in advocacy? I have no experience, so they aren’t really asking me.” How about “What difference can my story really make when the government is so big” or “What does it even mean to advocate?”

    More information and registration.


  • HNC Consumer Medical Symposium
    Saturday, May 1, 2021 – 10:00am-5:00pm

    Join Hemophilia of North Carolina (HNC) for the first Consumer Medical Symposium. Geared toward patients with a bleeding disorder and caregivers, this event is designed to provide you with an in-depth look at science of bleeding disorders as well at the importance of comprehensive care for bleeding disorders

    More information and registration.


Previous Virtual Events

  • Pre-Festival Game Night
    Monday, April 12, 2021 – 7:00pm-8:00pm

    Join Hemophilia of North Carolina (HNC) for a night of fun and games! This is one of HNC’s pre Charlotte Family Festival & Walk for Bleeding Disorders event to get you excited about the virtual celebration on April 17.


  • Bicycle Safety Event
         For Children 6-12 and Parents
    Saturday, April 3, 2021 – 2:00pm-3:00pm

    Join Hemophilia of North Carolina (HNC) for the first Consumer Medical Symposium. Geared toward patients with a bleeding disorder and caregivers, this event is designed to provide you with an in-depth look at science of bleeding disorders as well at the importance of comprehensive care for bleeding disorders


  • HNC 48th *Virtual* Annual Meeting
         A Time of Change
    Saturday, March 6, 2021 – March 21, 2021 (sessions on three successive weekends)

    This year’s Annual Meeting is going virtual! Throughout the month of March, join us for sessions about living with and caring for someone with a bleeding disorder. There will be a mix of sessions for everyone and time to connect with the bleeding disorders community from around North Carolina.


  • Comprensión de los ajustadores de acumuladores (AAPs)
    jueves, 25 de febrero, 2021 – 7:00-8:00pm

    Invitamos a los miembros de la comunidad para que nos acompañen a conocer los programas de ajustedores de acumuladores ("Accumulator Adjuster Programs" – AAPs). Bajo un AAP, un administrador de beneficios de farmacia puede aceptar asistencia de copago a terceros para gastos de su propio bolsillo asociados con un medicamento recetado, pero luego este no cuenta como parte de la cantidad del deducible general del paciente. Esta es una nueva tendencia de seguros que ha tenido un impacto negativo en los pacientes.


  • Understanding Accumulator Adjusters
         Virtual Advocacy
    Thursday, February 25, 2021 – 7:00pm-8:00pm

    We invite community members to join us to learn about Accumulator Adjuster Programs (AAP). Under an AAP, a pharmacy benefit manager can accept third-party co-pay assistance for out-of-pocket costs associated with a prescribed drug but then doesn’t credit that amount toward the patient’s overall deductible. This is an emerging insurance trend that has been negatively impacting patients.


  • Virtual Educational Dinner
         Expect the Unexpected
    Thursday, February 18, 2021 – 7:00pm-8:00pm

    Emergency room staff, including physicians, may have little experience in the management of patients with bleeding disorders because they are rare conditions. This presentation will help you avoid and prepare for a possible trip to the ER, anytime, anywhere – even when traveling or during a natural disaster.


  • Virtual Women’s Luncheon and Painting Project
         An HNC SOAR Project Event
    Saturday, February 13, 2021 – 12:30pm-2:00pm

    Join Hemophilia of North Carolina for a Women’s Luncheon and educational presentation, Von Wille-What? Diagnosis with a bleeding disorder as an adult. A "board and brush" craft project will follow the program.


  • Virtual Educational Dinner
         Constructive Conversations
    Thursday, February 4, 2021 – 7:00pm-8:00pm

    Gain an understanding of how motivational interviewing helps individuals living with hemophilia interact with caregivers and health care providers.


  • Virtual Educational Event: Family Feud
    Saturday, January 16, 2021 – 4:00pm-5:00pm

    Who loves a good game? Join us for the first event of 2021, virtual Family Feud, and find out just how much you know about bleeding disorders. Bring the entire family for an afternoon of fun and community, and just a little bit of competition!




HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 919-319-0014 Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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https://www.hemophilia-nc.org/VirtualEvents/2021/
 This page was last modified on Thursday, January 28th, 2021.